Friday, March 13, 2009
What a Week
Sorry again for my delay in posting. So much has happened over the last two weeks I don't even know where to begin. Thankfully, we have some new answers... and a new beginning on it's way. I think 3 is going to be Avery's year. Her year for healing, her year for progress, her year for hope.
After waiting over 6 months to get an appointment, we finally got Avery in to see a DAN (Defeat Autism Now) doctor who also happens to be an immunologist who specializes in Autoimmunity and allergies. We have several tests pending, and many blood, urine and stool samples on their way to yield results, but we finally have some renewed optimism. Some hope that this downward spiral CAN get better, and slow down a bit. This physician is looking to treat Avery in some new ways, and he believes we can really repair some of her brain damage and cellular deficiencies through a variety of medications and treatments. Call me nurse Jenny as I am about to be an expert on giving daily injections and taking HBOT plunges with her into an oxygen chamber 5 days a week!
We also survived Avery's first school district evaluation and parent meeting today. As expected, they are recommending a very intensive program for her that involves a variety of therapies, PT, OT, Speech and behavioral. We have some pretty tough decisions yet again to make, as we decide whether to send her the full day, or keep her half day and continue with our current battery of private, out of pocket, therapy that we really feel is benefiting her. I am hopeful the district will accomodate us with the half day idea for the short two months till summer break... but who knows. Sometimes I really wish we had a crystal ball to see what would be the best call... all we can to is dig down deep, hope and pray we are doing the best we can for our sweet and amazing daughter.
Thankfully, the army of "Avery Supporters" continues to astound me with their love and generosity. My mom has been here this week to help us get through, and you should have seen how many therapists and friends came through for us this morning for our school evaluation. They are nothing short of spectacular, and I will forever be grateful for their kind hearts and lifelong friendships. From babysitting to good thoughts/prayers, to actually being there... everybody plays a integral part in helping us get through these times.... and we are blessed. Beyond measure.
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Jenny, these pictures are some of the best yet. The black and white one of Avery brings tears to my eyes! Give her kisses for me. I'm missing her BIG time this week.
Jenny - your girls are simply beautiful and so fortunate to have such wonderful and dedicated parents. I just wanted to check in with you and see how things are going -- I so so hope that this is Avery's year as well. Wishing you all the best this upcoming year - Mara
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