Avery Grace

Avery Grace

Monday, January 11, 2010


How we measure success depends largely on our own upbringing, our own place in various sociological races, our temperment, our personal outlook, and so on. For most of my life, I have thrived in a world of competition, stayed the course, been rewarded for hard work, years of study, and perseverance. As my Dad would say, most of my life had been pretty "charmed." He doesn't say that much anymore, but I would venture to bet that he knows that in many ways, it still is.

So, from year to year, I would look back and be proud of various accomplishments, and look forward to the year ahead with eager dreams. Always knowing without a doubt, that if I worked hard enough, surely I would reach my goals... no matter how lofty. Call it arrogance. Call it blind naivety, immaturity, whatever... but it was a nice place to be. A place where no matter how difficult the obstacle... success was sure to be found.

Though I don't live in that place anymore, I do reside in a much more real, raw, and bittersweet location. Maybe motherhood in and of itself would have paved the way, but the real vehicle for the transformation has been having a child with a debilitating disease and a significant disability. It has changed the way I live, the way I see, and the way I perceive almost everything. It has colored every aspect of my life, and every single day I am reminded of how incredibly hard, yet lovely, life is when you have a child who is challenged in almost every way.

The last few years have brought me wisdom beyond that which I ever imagined, strength I never dreamed I could have found, and love that sees beyond words, gestures, and literal meaning. It wasn't my "plan," but it has become my purpose. I have lost my competitive edge, and certainly don't sweat the small stuff. But I am happier for it, and certainly more evolved.

So now, as we start a new year fresh... I am learning to let go of the hopes of years past that fell short. The goals yet to be achieved and the dreams that fade a little each passing year. My life, my husband, my children, my family and my friends are what matter, and the lessons they bestow upon us when we are graced with their presence. Perfection is not the goal, and neither is "progress" or whatever that means. Moment to moment living...coping, realizing your blessings, and understanding your own personal purpose. That is my new dream. To never quit learning, evolving, and finding new, breathtaking moments within the struggle.

It's not that I have lost hope. Rather, I see hope in a different way. I will remain relentless in finding ways to help my child... but I won't let her progress or lack there of determine my happiness or shape my attitude. I can't. I won't survive this if I did. And it's not as though she hasn't improved in some ways. Every month I feel like we have broken through just a little bit more.... but it still burns that my child has yet to regain most of the skills she had as a 12 month old. She is almost 4 after all. But in between the difficult moments... there is peace. So I will keep my focus on that... and move on.

As we enter this brand new year, it is my prayer that it will be full of blessings. Progress will certainly come, and we will be grateful, but my happiness and contentment surely won't depend on it. So cheers to 2010. May it bring you love. May it bring you joy. May it bring you truth... and best of all, may it bring you peace.


Unknown said...

I have been reading your autism blog… nice work.

I saw this great youtube clip from the autism treatement center of America spoofing the mac vs pc ads. They are doing aba vs the son rise program. I have a friend who is using the son rise program with his 6 yr old son and is having awesome results. I thought the clip was funny and thought I would share it with you.
I hope you enjoy it.
If you get a chance check out the atca webpage at



senchoneko said...

The next video in the series was just released... did you see this one yet?
check out the 3rd clip

I also believe in the sonrise program. It is completely holistic and they believe in gfcf diet. It's all great stuff.
best to you